The world's first report on the development of systemic lupus erythematosus is released - "blue book" for "lupus" diagnosis and treatment

When it comes to systemic lupus erythematosus, people often smell discoloration

How scary is lupus?

Professor Zeng Xiaofeng, director of the National Clinical Research Center for Skin and Immune Diseases and director of the Department of Rheumatology and Immunology of Peking Union Medical College Hospital, introduced that systemic lupus erythematosus (SLE) is a systemic autoimmune disease that currently cannot be cured

How to understand "systematic"? Zeng Xiaofeng explained that systemic lupus erythematosus is a systemic disease that often leads to damage to organs, especially the kidneys and nervous system, skin, blood system, respiratory system, and almost all systems may be involved

What symptoms should be screened for systemic lupus erythematosus? "Since the clinical manifestations of systemic lupus erythematosus are diverse, systemic lupus erythematosus can cause many symptoms, and it can be said that any symptoms may be present

Which groups are at high risk of systemic lupus erythematosus?

According to Professor Li Mengtao, director of the Office of the National Clinical Research Center for Skin and Immune Diseases and deputy director of the Department of Rheumatology and Immunology of Peking Union Medical College Hospital, patients with systemic lupus erythematosus are mainly concentrated in women of reproductive age, and the ratio of male to female patients is about 1:12

"Up to now, the pathogenesis of systemic lupus erythematosus has not been fully elucidated

So far, systemic lupus erythematosus is still an incurable life-long disease.

What pitfalls should patients be aware of?

Zeng Xiaofeng pointed out that the 10-year survival rate of SLE patients in China has risen to 89%, which is comparable to the level of developed countries

"At present, some patients have some misunderstandings.

Li Mengtao pointed out that in addition to patients' weak awareness of standardized treatment and regular follow-up, primary-level doctors also have a serious lack of awareness of SLE, and some medical staff have insufficient awareness of standardized treatment and standard treatment

A few days ago, the "China Systemic Lupus Erythematosus Development Report 2020" (hereinafter referred to as the "Report"), initiated and compiled by the National Skin and Immune Disease Clinical Research Center and the National Rheumatology Data Center, was released in Beijing

　　"This is the first report on SLE in the world at present, and it has reference significance for promoting the development of global SLE

　　Hormone therapy, if not?

　　The report pointed out that 89.

　　According to the data of the China Systemic Lupus Erythematosus Research Collaborative Group, 84.

　　How to help patients reduce or even not use hormones? Li Mengtao pointed out that hormones are still the basic drug for the treatment of systemic lupus erythematosus, and hormone therapy must be used in the course of the disease

　　Li Mengtao introduced that at present, including China, the world has achieved fruitful results in basic translational research on rheumatic immune diseases.

Editor: Meng Tingwei