The three most common side effects of SLE patients seriously affect the quality of life!

In addition to SLE itself, many physical discomforts affect the patient's quality of life, such as sleep disorders, poor mood, weight gain and difficulty remembering, leaving patients in a poor state of
life.

Often these adverse symptoms do not attract the attention of patients and their families, and they are often routinely avoided and treated indifferently
.

According to the important factors that affect the quality of life of patients mentioned in the literature, Mutual Aid Jun puts forward clear coping strategies for sleep disorders, poor mood and weight gain, in order to help patients regulate their own life conditions and improve their quality of life
.

Sleep disorders

Sleep disorders have become an important symptom affecting the quality of life of SLE patients, and the literature mentions that more than 30% of SLE patients have sleep disorders, of which insomnia is particularly common, difficult to fall asleep and easy to wake up", "sleep at night, still drowsy during the day", "upset mood after insomnia" are the most frequently mentioned sleep troubles
by butterfly friends.

Image source: Photo.
com

The main reason for sleep disorders in SLE patients is the patient's psychological pressure, their own pain and the side effects of drugs, which not only have a serious adverse impact on the treatment and rehabilitation of patients, but also are one of the main reasons for the decline in the quality of
life of patients.

Even, because sleep disorders can lead to a decline in the patient's immunity, it may eventually lead to aggravation or recurrence
of the disease.

A few ways to improve sleep quality:

1 drug for insomnia

Melatonin is currently a more common way to help sleep, and studies have shown that taking a low dose of melatonin half an hour before falling asleep can increase the level of melatonin in the body, improve people's drowsiness, and improve insomnia symptoms
.

For patients with severe insomnia, you can try to take melatonin
after consulting a doctor.
In addition, according to statistics, melatonin can increase the complete and partial remission rate of the disease to a certain extent, alleviate the condition of
thrombocytopenia.
For patients with insomnia, taking melatonin is an effective and safe way
.

2 Acupuncture

In a randomized trial comparing the effectiveness of insomnia in critically ill patients, acupuncture had a clear improvement in
insomnia.
However, acupuncture is mainly to carry out auxiliary regulation, and patients can regularly find professional Chinese medicine practitioners in regular hospitals for acupuncture
.

3 Develop a scientific sleep schedule

Under normal circumstances, the human body will begin to secrete melatonin at 9 o'clock, gradually making people sleepy, and 1-2 o'clock in the morning is the deepest time to
sleep.
But if you don't sleep during this period, you are prone to insomnia
.

Therefore, setting a scientific sleep time and developing a "biological clock" can help regulate normal sleep
.
In addition, stay away from mobile phones before going to bed, studies have shown that the blue light of mobile phones can affect melatonin secretion
.

Bad mood

There is no real empathy in the world, and in the face of diseases that SLE needs to be treated with all your might, it is inevitable that there will be times
when you will be defeated by negative emotions.
"Irritability, difficulty remembering, negative emotions, and depressed desire to take your own life" are all real emotional fragments
of SLE patients.

In a study of hospitalized women with SLE, 60.
7% of patients were depressed, and the more severe the depression, the worse
the quality of life and life prognosis.

A few ways to improve mood:

1 drug treatment

If you have obvious depressive symptoms, you need to seek help from a doctor in time and take medication
under the guidance of a doctor.

At present, the clinical treatment of depression is mainly treated by drugs, and can be carried out
with psychological intervention when necessary.
Studies have found that antidepressant drug treatment coupled with appropriate behavioral intervention therapy has a clear effect
on patients' depressive symptoms.

2 Music or exercise therapy

Studies have shown that relaxing and cheerful music can stimulate the human cerebral cortex, prompting the body to secrete some active substances such as hormones, enzymes and neurotransmitters that are beneficial to health, and maintain psychological balance
.

Similarly, exercise secretes the pleasant dopamine
.
If you're feeling bad, open the music app to play your favorite playlist, or come up with a simple retro disco and relax with great music and happy dance steps
.
If you feel it, the effect of singing loudly is better, and the effect of burning fat!

3 Group therapy

There is nothing more relaxing than confiding, if you are full of worries and have nowhere to vent, you can communicate
with everyone in the patient group.
Although there is no real empathy in the world, everyone understands your most vulnerable point
as a SLE patient.

Research has shown that one of the best ways to combat lupus depression is through group psychotherapy, where a group of patients facing similar problems can support, accept, communicate and learn from each other to provide each other with the motivation
to heal.

In Mijian, we have a lot of patient communication groups, which can help butterfly friends gather together, learn and communicate together, wolf warrior knowledge, and promote butterfly friends to encourage each other, support each other, and overcome difficulties on the road of wolf warriors!

Therefore, it is better to be excited than to act! Scan quickly to join the butterfly friend group~ Whether you want to enter the "belimumab exchange group", "hormone reduction exchange group", "lupus nephritis exchange group", or butterfly friends groups all over the country, we can satisfy you!

Weight gain

This mutual aid jun wants to say a word for butterfly friends: You are really not fat! In the literature, we found that more than 60% of patients have normal weight, nearly 20% of patients are underweight, and the remaining 20% of overweight patients, most of which are only in the early stage of obesity and cannot meet the standard of
obesity.

That's why butterfly friends care so much about weight, because one of the most serious side effects of hormones is fatness, full moon face, buffalo back, these labels make SLE patients in their flowering season unable to breathe
.
But don't worry too much, because hormone fattening is controllable and reversible!

A few ways to manage your weight:

1 Treat hormone therapy correctly

First of all, taking hormones must strictly abide by the doctor's advice, do not stop the drug at will because of worries about side effects, reasonable use of hormones to control the condition in time, along with the relief of the disease, the amount of hormones will gradually decrease, and the side effects will be alleviated
.

If you are concerned that the side effects of large amounts of hormones will not subside, you can consult your doctor whether you can reduce the amount of
hormones in combination with immunosuppressants.
As the amount of hormones decreased, the obesity caused by hormones will gradually subside
.

2Develop a good habit of exercise

Don't shy away from exercising
just because you're a patient.
Exercise is the panacea for stabilizing the condition and improving the efficacy
.
However, SLE patients also pay attention to exercise, and the time and intensity should not be excessive.

SLE patients who want to lose weight can reasonably plan their exercise schedule, preferably at least 3 times a week, at least 30 minutes of aerobic exercise each time, and recommend gentle exercises
such as brisk walking, jogging and playing eight dan brocade.

3 Balanced nutrition without indulgence

The last thing is the most important, if you want to lose weight, you must start with diet
.
Because the good appetite brought by hormones will make butterfly friends can't stop eating, but pay attention! Stay away from foods high in sugar, oil and salt, which may give you a sense of satisfaction, but with them come a full red light on blood lipids, blood sugar and skin!

SLE patients want to lose weight, first of all, they must adhere to sugar control, in addition to three meals a day, do not eat snacks and pastries; Secondly, the daily three meals should also be nutritionally balanced, avoid frying, frying, roasting and other unhealthy practices, with white burning, boiling, stir-frying is appropriate, remember to grasp the amount of salt taste light and the best; Finally, ensure your daily intake of fruits and vegetables and eat more green leafy vegetables
.

Write at the end

I believe that as long as these three troublesome problems are solved, the quality of life of butterfly friends will change, take action, tomorrow you will definitely thank yourself for working hard now!

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