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65% of people with SLE consider chronic pain to be the hardest part of the disease to face
76% of people with SLE admitted that fatigue caused by lupus forced them to reduce their social activities
89% of SLE patients said they could no longer work full-time due to complications from lupus
With the great improvement of the diagnosis and treatment of systemic lupus erythematosus in recent years, most patients with SLE can achieve at least a small dose of hormones or zero hormones to maintain low disease activity, and a small number of patients can even achieve the treatment goal
of complete remission or clinical remission.
However, more patients may be experiencing such a situation: after standardized treatment, SLE is relatively stable, but there is still one or more physical discomforts, physical examination has no corresponding signs, and various examinations have no corresponding positive findings
.
You may be experiencing "fibromyalgia.
"
Fibromyalgia is a group of clinical syndromes characterized by generalized pain and obvious physical discomfort, often accompanied by fatigue, sleep disturbance, morning stiffness, depression, anxiety and other psychiatric symptoms, as well as Raynaud's syndrome, irritable bowel syndrome and psychological illness
.
About 30% of SLE patients will accidentally "get hit"
.
If there is standardized treatment under the guidance of a doctor, and the disease of SLE is stable after the doctor's evaluation, but the following types of discomfort symptoms still occur, you should be alert to "fibromyalgia syndrome", such as:
Pain: Pain can be manifested as headache, neck pain, back pain, chest pain, joint pain in the limbs, pelvic pain, abdominal pain, etc.
, sometimes mild and sometimes severe
.
Although it is difficult to locate accurately, it is common to feel significant pain
at the "18 tender points".
Sleep disorders: difficulty falling asleep, easy to wake up from shallow sleep, dreaming, early awakening, difficulty falling asleep after waking up, discomfort after waking up, etc
.
Fatigue: usually a feeling
of fatigue that is difficult to resolve.
Other somatization symptoms: palpitation, dizziness, indigestion, diarrhea, frequent urination, menstrual disorders, decreased libido, numbness, decreased attention and memory, etc
.
Emotional problems: low mood, irritability, easy anger, etc
.
How to deal with fibromyalgia?
There is a strict set of criteria for the diagnosis of fibromyalgia, and this does not mean that fibromyalgia
is necessarily present.
Therefore, those with the above symptoms should seek the help
of a rheumatologist.
Although fibromyalgia is currently mainly treated with medication, non-drug treatment is supplemented
.
But here are some ways to help you provide more targeted relief
from certain symptoms.
pain
Although there are many "pain relievers" that can relieve long-term chronic pain caused by fibromyalgia, there are certain side effects
due to the drugs.
Therefore, we recommend other ways to relieve pain
.
Warm compresses are very effective
for pain relief in muscles and joints.
Wet compresses work better, so for those who are in significant pain, we "Amway" baths and hot baths to relieve pain
.
Meditation, self-hypnosis, yoga, and tai chi are also good choices that you can do
at home.
Acupuncture and massage massage also have a certain effect on pain relief, but it must be done
under the guidance of a professional doctor.
fatigue
It is normal
to feel tired after a long day of work.
But more than 80% of SLE patients experience "extreme" fatigue and feel hollowed out
.
To combat fatigue, try these tips:
Fibromyalgia can cause problems
with sleep.
In turn, lack of sleep may aggravate SLE or worsen symptoms
such as fatigue and pain.
The following measures may help you sleep better, fall asleep faster, and wake up with stronger energy: