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EULAR Recommendation: Core Data Set for Pregnancy Registration of Rheumatism

 Last Update: 2021-12-26
 Source: Internet
 Author: User

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In recent years, several rheumatism pregnancy registries have been established in Europe to prospectively collect and analyze data on pregnant women with different inflammatory rheumatism (IRD)

The European Union Against Rheumatism (EULAR) Working Group on Antirheumatic Drugs in Pregnancy and Lactation also emphasized the need to cooperate in collating data on new drugs

The combined analysis of data from different sources requires that the collected data have a certain degree of homogeneity

Research design As emphasized by other initiatives in rheumatology, coordination and standardization of projects and their cross-research measurements are essential to promote collaborative research

, These studies prospectively collect information about pregnant women with IRD, including the neonatal stage (4 weeks postpartum)

Method: A step-by-step process includes two rounds of Delphi surveys and a face-to-face meeting to reach consensus on related projects

Method: consensus

Results: A total of 64 multidisciplinary stakeholders from 14 different countries participated in the two rounds of the Delphi process

Result: Rheumatoid Arthritis

In summary, this is the first consensus-based core data set for prospective pregnancy registration in rheumatology

This is the first consensus-based core data set for prospective pregnancy registration in rheumatology
.
Its purpose is to promote and promote transnational cooperation, aiming to increase the understanding of the pregnancy process and the safety of treatment for women with IRD during pregnancy
.
It is hoped that this proposal will be helpful in establishing a new registry and increase the willingness of rheumatologists, other healthcare professionals and patients to contribute to the registry and provide the necessary data
.

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