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*Only for medical professionals to read for reference.
Responding to the national call of "Healthy China 2030", pay attention to the quality of life of lung cancer patients, and seek survival benefits for patients
.
Lung cancer is the first in the number of new cases and deaths among common cancers in China
.
According to data from the International Agency for Research on Cancer (IARC) of the World Health Organization, in 2020, there will be about 4.
57 million new cancer cases in China and about 3 million deaths in China; among them, the number of new lung cancers is about 820,000, and the number of deaths is about 710,000 people, which is equivalent to at least one person dying from lung cancer every minute
.
In response to the national call of "Healthy China 2030" and helping cancer patients improve their survival rate and quality of life, Mijian launched the "National Cancer Patient Quality of Life Survey" for three consecutive years under the guidance of the China Anti-Cancer Association, calling on all sectors of society to pay attention to lung cancer.
Groups
.
In 2021, Mijian and Beijing Aipu Cancer Patient Care Foundation will have in-depth insights and release the "2021 White Paper on the Quality of Life of Lung Cancer Patients in Western China" (hereinafter referred to as the "White Paper"), discovering the survival status of lung cancer patients in the western region, and exploring western lung cancer The unmet needs of patients during the entire course of rehabilitation management provide an important reference for improving the quality of life of lung cancer patients in the western region
.
On December 18, 2021, the offline press conference of the "2021 White Paper on the Quality of Life of Lung Cancer Patients in Western China" and the establishment ceremony of the Feiyang Silk Road-Western Lung Cancer Patient Education Alliance were successfully held in Chengdu
.
Shi Anli, Chairman of the Rehabilitation Branch of the Chinese Anti-Cancer Association, Chairman of the Beijing Aipu Cancer Patient Care Foundation, Wu Guoming, Deputy Chief Physician of Respiratory Medicine, Xinqiao Hospital Affiliated to Army Military Medical University, Li Juan, Deputy Chief Physician of Thoracic Surgery, Sichuan Cancer Hospital, Sichuan University Qiu Xiaoming, deputy director of the Lung Cancer Center of West China Hospital, Li Miao, director of the Second Department of Oncology, Qinghai Cancer Hospital, Wei Shihong, deputy director of the Department of Radiotherapy, Gansu Cancer Hospital, Zhang Yu, deputy director of the Department of Oncology, Guizhou Provincial People’s Hospital, Department of Thoracic and Cardiovascular Surgery, Southwest Medical University Hospital of Traditional Chinese Medicine Deputy Director Liu Hao, Deputy Director Wei Xuemei of the Respiratory and Critical Care Medicine Center of Xinjiang Autonomous Region People's Hospital, Zheng Yun, attending physician of the Oncology Department of the Affiliated Hospital of Southwest Medical University, and Lin Renshu, Deputy General Manager of Mijian attended the meeting
.
1.
The results of the survey on the quality of life of lung cancer patients in western China are released, and the needs of lung cancer patients need to be solved urgently.
1.
The side effects are an important factor that affects the quality of life of patients.
55.
4% of lung cancer patients in western China have experienced serious side effects, which seriously affect the quality of life of the patients
.
She also pointed out: “It can be seen from the white paper that 16.
9% of targeted therapy patients and 16.
7% of immunotherapy patients stopped/changed drugs due to severe side effects of treatment.
This is actually a phenomenon that doctors and patients do not want to see
.
A good one .
Treatment methods, if the tumor can be effectively controlled, we are very unwilling to discontinue the drug due to adverse reactions that are not well managed and patients intolerant of the drug.
This is a pity and regret
.
Therefore, we still require doctors to do more The professional online science popularization helps patients to manage side effects, reduce the phenomenon of drug withdrawal due to side effects, and enable patients to benefit more from the drugs, so as to improve the quality of life of patients
.
" Li Juan, deputy chief physician of thoracic surgery, Sichuan Cancer Hospital During the rehabilitation of patients, there is a large gap in demand for chronic disease management and nutritional guidance.
Data shows that 67.
3% of western lung cancer patients have chronic diseases and organ functional impairments, and 24.
3% of western lung cancer patients are at risk of malnutrition.
Both are important factors affecting the quality of life of lung cancer patients
.
Professor Qiu Xiaoming, deputy director of the Lung Cancer Center of West China Hospital of Sichuan University, explained the factors affecting the quality of life of lung cancer patients from the "physical and psychological" aspects of lung cancer patients: "Lung cancer patients not only need to pay attention to physical health, including side effects management and improvement of malnutrition.
It is more important to pay attention to mental health, which is of great help to the improvement of the quality of life of patients
.
" Qiu Xiaoming, deputy director of the Lung Cancer Center of West China Hospital, Sichuan University Therefore, patients start from the diagnosis of the disease.
Disciplines and multi-party social resources work together to empower patients to carry out comprehensive and full-course rehabilitation management
.
2.
Western lung cancer patients have a higher demand for Internet medical services.
50.
6% of western lung cancer patients have experienced medical treatment in other places.
The main purpose is to seek better medical resources and experts, local medical treatment is limited or doctors suggest, compared with national lung cancer patients, western lung cancer patients The proportion of patients who choose to seek medical treatment in other places because of "limited local medical treatment/doctor's recommendation" is relatively high
.
In order to seek a second diagnosis and treatment opinion to obtain a better survival rate and quality of life, 41.
5% of western lung cancer patients have used online consultation, which is significantly higher than the national use rate (34.
9%)
.
It can be seen that patients with lung cancer in the west have a greater demand for higher-level diagnosis and treatment, which gives us a hint that a more efficient and high-quality diagnosis and treatment path should be explored as soon as possible
.
3.
The importance of western lung cancer patients on early diagnosis and screening needs to be improved.
The white paper found that 22.
6% of western lung cancer patients have an interval of more than 6 months from the onset of symptoms to the first diagnosis, which is higher than the national average; and the interval between first visits and lung cancer patients The stage classification and prognosis of diagnosis and treatment are closely related.
Compared with patients whose first visit interval is more than one month, the proportion of patients whose first visit interval is less than one month is diagnosed as late is lower, which is 38.
0%
.
The public's awareness of lung diseases and the importance of early diagnosis and screening needs to be improved
.
2.
Experts jointly offer advice to improve the quality of life of patients.
Patient education and rehabilitation management throughout the course of the disease are crucial.
During the meeting, many experts addressed the concerns of lung cancer patients "how to improve the quality of life of lung cancer patients" and "what should patients do in the management of the whole course of the disease.
" "What to do" conducted in-depth discussions and made many suggestions
.
Professor Wei Xuemei, deputy director of the Respiratory and Critical Care Medicine Center of the People’s Hospital of Xinjiang Autonomous Region, talked about the importance of MDT: “The management of lung cancer patients requires the development of multidisciplinary diagnosis and treatment (MDT diagnosis and treatment model).
MDT basically runs through the diagnosis and treatment of patients.
In the process, the most optimal treatment plan can significantly improve the quality of life of patients and increase their survival
.
"In the management of the entire course of the patient, in addition to the efforts of doctors, patient education is also crucial
.
Professor Li Miao, Director of the Second Department of Oncology, Qinghai Cancer Hospital, talked about her views: “The white paper mentioned that the immunotherapy population of lung cancer patients in western China is relatively low.
This may be related to the immunotherapy of some grassroots doctors and the majority of patient groups.
The lack of knowledge is related to deficiencies
.
Immunotherapy has become the first-line treatment for lung cancer, and combined chemotherapy has given patients a clear long-term survival benefit
.
However, the use of immunotherapy in patients with lung cancer in western China is low.
This requires our doctors and patients to work together to treat immunotherapy.
The importance, mechanism of action and indications of the lung cancer are popularized in the lung cancer group, so that immunotherapy can bring better survival benefits to patients
.
"3.
To increase the degree of attention to the lung cancer group, the Feiyang Silk Road West Lung Cancer Experts and Education Alliance was established In 2021, Beijing Aipu Cancer Patient Care Foundation and Mijian will set up a public welfare project for lung cancer science education-Lung Yang Silk Road, which will gather hundreds of lung cancer doctors in western China through online public welfare Q&A, regular live broadcast by experts, and online science popularization by experts, etc.
Diversified forms have brought professional and authoritative lung cancer knowledge and scientific anti-cancer concepts to millions of patients, and provided online one-on-one question and answer services for thousands of lung cancer patients.
One step
.
In order to continue to meet the needs of patients, Feiyang Silk Road has established the "Western Lung Cancer Experts, Patients and Education Alliance", which will work with lung cancer doctors to meet the needs of lung cancer patients in physical, diagnosis and treatment, and psychological aspects, and empower patients to return to a better life
.
About Mijian: Mijian is a digital cancer patient course management platform.
Currently, it has gathered more than 1.
5 million patients and their families to provide patients with accurate one-stop rehabilitation services.
Based on the patient-centered concept, we are committed to empowering more The patient returns to a better life! Concluding remarks: "economic difficulties", "drug resistance concerns", "metastasis concerns", "the inability to obtain more in-depth tumor knowledge", and "the treatment plan is unknown" are the biggest difficulties currently faced by lung cancer patients in western China
.
Here, Mijian speaks for patients, calling on government departments, medical institutions, charity organizations and other people from all walks of life to pay attention to and promote the standardization of lung cancer diagnosis and treatment and the popularization of lung cancer knowledge, promote friendly communication between doctors and patients, and seek survival opportunities for patients, and improve The patient’s quality of life
.
We look forward to the joint efforts of all parties in the society to continue to actively explore the full-course management of lung cancer patients such as prevention, screening, diagnosis, treatment, rehabilitation, care, etc.
, and ultimately achieve a substantial increase in the 5-year survival rate in China, and make lung cancer truly It becomes a chronic disease, enabling lung cancer patients to achieve high-quality long-term survival with tumors
.
*This article is only used to provide scientific information to medical professionals, and does not represent the views of this platform
Responding to the national call of "Healthy China 2030", pay attention to the quality of life of lung cancer patients, and seek survival benefits for patients
.
Lung cancer is the first in the number of new cases and deaths among common cancers in China
.
According to data from the International Agency for Research on Cancer (IARC) of the World Health Organization, in 2020, there will be about 4.
57 million new cancer cases in China and about 3 million deaths in China; among them, the number of new lung cancers is about 820,000, and the number of deaths is about 710,000 people, which is equivalent to at least one person dying from lung cancer every minute
.
In response to the national call of "Healthy China 2030" and helping cancer patients improve their survival rate and quality of life, Mijian launched the "National Cancer Patient Quality of Life Survey" for three consecutive years under the guidance of the China Anti-Cancer Association, calling on all sectors of society to pay attention to lung cancer.
Groups
.
In 2021, Mijian and Beijing Aipu Cancer Patient Care Foundation will have in-depth insights and release the "2021 White Paper on the Quality of Life of Lung Cancer Patients in Western China" (hereinafter referred to as the "White Paper"), discovering the survival status of lung cancer patients in the western region, and exploring western lung cancer The unmet needs of patients during the entire course of rehabilitation management provide an important reference for improving the quality of life of lung cancer patients in the western region
.
On December 18, 2021, the offline press conference of the "2021 White Paper on the Quality of Life of Lung Cancer Patients in Western China" and the establishment ceremony of the Feiyang Silk Road-Western Lung Cancer Patient Education Alliance were successfully held in Chengdu
.
Shi Anli, Chairman of the Rehabilitation Branch of the Chinese Anti-Cancer Association, Chairman of the Beijing Aipu Cancer Patient Care Foundation, Wu Guoming, Deputy Chief Physician of Respiratory Medicine, Xinqiao Hospital Affiliated to Army Military Medical University, Li Juan, Deputy Chief Physician of Thoracic Surgery, Sichuan Cancer Hospital, Sichuan University Qiu Xiaoming, deputy director of the Lung Cancer Center of West China Hospital, Li Miao, director of the Second Department of Oncology, Qinghai Cancer Hospital, Wei Shihong, deputy director of the Department of Radiotherapy, Gansu Cancer Hospital, Zhang Yu, deputy director of the Department of Oncology, Guizhou Provincial People’s Hospital, Department of Thoracic and Cardiovascular Surgery, Southwest Medical University Hospital of Traditional Chinese Medicine Deputy Director Liu Hao, Deputy Director Wei Xuemei of the Respiratory and Critical Care Medicine Center of Xinjiang Autonomous Region People's Hospital, Zheng Yun, attending physician of the Oncology Department of the Affiliated Hospital of Southwest Medical University, and Lin Renshu, Deputy General Manager of Mijian attended the meeting
.
1.
The results of the survey on the quality of life of lung cancer patients in western China are released, and the needs of lung cancer patients need to be solved urgently.
1.
The side effects are an important factor that affects the quality of life of patients.
55.
4% of lung cancer patients in western China have experienced serious side effects, which seriously affect the quality of life of the patients
.
She also pointed out: “It can be seen from the white paper that 16.
9% of targeted therapy patients and 16.
7% of immunotherapy patients stopped/changed drugs due to severe side effects of treatment.
This is actually a phenomenon that doctors and patients do not want to see
.
A good one .
Treatment methods, if the tumor can be effectively controlled, we are very unwilling to discontinue the drug due to adverse reactions that are not well managed and patients intolerant of the drug.
This is a pity and regret
.
Therefore, we still require doctors to do more The professional online science popularization helps patients to manage side effects, reduce the phenomenon of drug withdrawal due to side effects, and enable patients to benefit more from the drugs, so as to improve the quality of life of patients
.
" Li Juan, deputy chief physician of thoracic surgery, Sichuan Cancer Hospital During the rehabilitation of patients, there is a large gap in demand for chronic disease management and nutritional guidance.
Data shows that 67.
3% of western lung cancer patients have chronic diseases and organ functional impairments, and 24.
3% of western lung cancer patients are at risk of malnutrition.
Both are important factors affecting the quality of life of lung cancer patients
.
Professor Qiu Xiaoming, deputy director of the Lung Cancer Center of West China Hospital of Sichuan University, explained the factors affecting the quality of life of lung cancer patients from the "physical and psychological" aspects of lung cancer patients: "Lung cancer patients not only need to pay attention to physical health, including side effects management and improvement of malnutrition.
It is more important to pay attention to mental health, which is of great help to the improvement of the quality of life of patients
.
" Qiu Xiaoming, deputy director of the Lung Cancer Center of West China Hospital, Sichuan University Therefore, patients start from the diagnosis of the disease.
Disciplines and multi-party social resources work together to empower patients to carry out comprehensive and full-course rehabilitation management
.
2.
Western lung cancer patients have a higher demand for Internet medical services.
50.
6% of western lung cancer patients have experienced medical treatment in other places.
The main purpose is to seek better medical resources and experts, local medical treatment is limited or doctors suggest, compared with national lung cancer patients, western lung cancer patients The proportion of patients who choose to seek medical treatment in other places because of "limited local medical treatment/doctor's recommendation" is relatively high
.
In order to seek a second diagnosis and treatment opinion to obtain a better survival rate and quality of life, 41.
5% of western lung cancer patients have used online consultation, which is significantly higher than the national use rate (34.
9%)
.
It can be seen that patients with lung cancer in the west have a greater demand for higher-level diagnosis and treatment, which gives us a hint that a more efficient and high-quality diagnosis and treatment path should be explored as soon as possible
.
3.
The importance of western lung cancer patients on early diagnosis and screening needs to be improved.
The white paper found that 22.
6% of western lung cancer patients have an interval of more than 6 months from the onset of symptoms to the first diagnosis, which is higher than the national average; and the interval between first visits and lung cancer patients The stage classification and prognosis of diagnosis and treatment are closely related.
Compared with patients whose first visit interval is more than one month, the proportion of patients whose first visit interval is less than one month is diagnosed as late is lower, which is 38.
0%
.
The public's awareness of lung diseases and the importance of early diagnosis and screening needs to be improved
.
2.
Experts jointly offer advice to improve the quality of life of patients.
Patient education and rehabilitation management throughout the course of the disease are crucial.
During the meeting, many experts addressed the concerns of lung cancer patients "how to improve the quality of life of lung cancer patients" and "what should patients do in the management of the whole course of the disease.
" "What to do" conducted in-depth discussions and made many suggestions
.
Professor Wei Xuemei, deputy director of the Respiratory and Critical Care Medicine Center of the People’s Hospital of Xinjiang Autonomous Region, talked about the importance of MDT: “The management of lung cancer patients requires the development of multidisciplinary diagnosis and treatment (MDT diagnosis and treatment model).
MDT basically runs through the diagnosis and treatment of patients.
In the process, the most optimal treatment plan can significantly improve the quality of life of patients and increase their survival
.
"In the management of the entire course of the patient, in addition to the efforts of doctors, patient education is also crucial
.
Professor Li Miao, Director of the Second Department of Oncology, Qinghai Cancer Hospital, talked about her views: “The white paper mentioned that the immunotherapy population of lung cancer patients in western China is relatively low.
This may be related to the immunotherapy of some grassroots doctors and the majority of patient groups.
The lack of knowledge is related to deficiencies
.
Immunotherapy has become the first-line treatment for lung cancer, and combined chemotherapy has given patients a clear long-term survival benefit
.
However, the use of immunotherapy in patients with lung cancer in western China is low.
This requires our doctors and patients to work together to treat immunotherapy.
The importance, mechanism of action and indications of the lung cancer are popularized in the lung cancer group, so that immunotherapy can bring better survival benefits to patients
.
"3.
To increase the degree of attention to the lung cancer group, the Feiyang Silk Road West Lung Cancer Experts and Education Alliance was established In 2021, Beijing Aipu Cancer Patient Care Foundation and Mijian will set up a public welfare project for lung cancer science education-Lung Yang Silk Road, which will gather hundreds of lung cancer doctors in western China through online public welfare Q&A, regular live broadcast by experts, and online science popularization by experts, etc.
Diversified forms have brought professional and authoritative lung cancer knowledge and scientific anti-cancer concepts to millions of patients, and provided online one-on-one question and answer services for thousands of lung cancer patients.
One step
.
In order to continue to meet the needs of patients, Feiyang Silk Road has established the "Western Lung Cancer Experts, Patients and Education Alliance", which will work with lung cancer doctors to meet the needs of lung cancer patients in physical, diagnosis and treatment, and psychological aspects, and empower patients to return to a better life
.
About Mijian: Mijian is a digital cancer patient course management platform.
Currently, it has gathered more than 1.
5 million patients and their families to provide patients with accurate one-stop rehabilitation services.
Based on the patient-centered concept, we are committed to empowering more The patient returns to a better life! Concluding remarks: "economic difficulties", "drug resistance concerns", "metastasis concerns", "the inability to obtain more in-depth tumor knowledge", and "the treatment plan is unknown" are the biggest difficulties currently faced by lung cancer patients in western China
.
Here, Mijian speaks for patients, calling on government departments, medical institutions, charity organizations and other people from all walks of life to pay attention to and promote the standardization of lung cancer diagnosis and treatment and the popularization of lung cancer knowledge, promote friendly communication between doctors and patients, and seek survival opportunities for patients, and improve The patient’s quality of life
.
We look forward to the joint efforts of all parties in the society to continue to actively explore the full-course management of lung cancer patients such as prevention, screening, diagnosis, treatment, rehabilitation, care, etc.
, and ultimately achieve a substantial increase in the 5-year survival rate in China, and make lung cancer truly It becomes a chronic disease, enabling lung cancer patients to achieve high-quality long-term survival with tumors
.
*This article is only used to provide scientific information to medical professionals, and does not represent the views of this platform
