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7 years of long treatment time, 22 hospitalizations and discharges... After being diagnosed with severe regenerative anemia, Mr. Hu underwent treatment, improvement, recurrence, stem cell transplantation, and was finally cured.
In 2021, four years after being discharged from the hospital, Mr. Hu returned to guangzhou's First People's Hospital and donated 20,000 yuan to the "Regeneration Assistance" Fund, not only to support and encourage patients suffering from the same disease, but also to express his gratitude to all the medical staff in the hematology department of a hospital in the city.
" In fact, this donation is affected by the city of a hospital Mo director, Mo director is the most loving doctor I have ever met, I hope my actions and stories can bring hope and motivation to patients.
" Mr. Hu wants to tell his patients - "I can do it, and so can you!" Hope, like sailing in the sea, through the storm in front of us, the front is endless blue sea and blue sky! "Seven years after receiving a stem cell transplant and then encountering challenges as early as May 2014, Mr. Hu was diagnosed with "severe regenerative disorder anemia" due to "double lower limb plaque, repeated fever" and found a decrease in whole blood cells.
after the standard anti-thymus cell immunoglobulin strong immunosuppression and then cyclosporine treatment, consciously improved symptoms, returned to Ji'an home.
thought the condition improved steadily, but in early 2015 again appeared fever, the whole blood cells significantly reduced, because the disease worsened in March to guangzhou First People's Hospital hematology treatment.
after perfecting the relevant examination, Mr. Hu was diagnosed as "heavy-duty regenerative disorder anemia", because immunosuppressive treatment is ineffective, the proposed hematopoietic stem cell transplant, by the director of haematology Zhang Yuping responsible for its transplant.
received a non-kinship hematopoietic stem cell transplant in May 2015 after actively contacting the Chinese bone marrow bank and combining the wishes of the patients themselves and their families.
considering that Mr. Hu is a benign disease, the team of hematologists has taken the transplant program to the maximum possible to preserve fertility and ensure the quality of life of patients after transplantation.
hematopoietic stem cell transplantation after the failure of immunosuppressive therapy, it is generally accepted that the treatment is more difficult.
after the transplant, Mr. Hu's immune function recovered slowly, and a variety of post-transplant infection complications occurred.
three months after the transplant, in August 2015, Mr. Hu was diagnosed with EB virus infection-related lymphatic tissue growth lesions, improved after treatment, followed by a decline in vision in both eyes, was diagnosed as double-eye cytocytocyte retinitis, can be described as a wave of uneven.
, a long-term immunodeficiency disorder that causes patients to develop multiple serious pathogen infections, is a major challenge for medical personnel, patients themselves and their families," said Dr. Mo Wenjian of the Department of Hematology.
"Overcome the re-disabled" monster" to give back to the community to convey love Guangzhou First People's Hospital hematology medical staff carefully arranged for Mr. Hu's diagnosis and treatment program, by hematology, ophthalmology, pathology multidisciplinary collaboration, after up to 1 year of active cooperation between doctors and patients treatment, Mr. Hu infection was well controlled, lymphatic tissue proliferation diseases and cytokinevirus retinitis are significantly improved.
, Mr. Hu, his family and medical staff, after years of hard work and struggle, finally overcame the "monster" of severe regenerative anemia.
he has now returned to work and life and his family is happy.
Mr. Hu recalled the whole treatment process, it was hard and difficult, but fortunately met a good doctor, met a donor, the overall result is good, he is undoubtedly lucky.
Hu said that in the seven years since his illness, there have been moments of depression, loneliness and despair, but his seafaring experience has given him a lot of insight, so that he has more courage to face the pain.
most difficult time, he recalls sailing off the Japanese island of Okinawa, where he encountered four typhoons a month that could have put his life at risk at any time.
experience made him realize the smallness and value of life, as long as alive, should face up to.
you have a firm will besides yourself.
how to return to society after the treatment of anaemia with regenerative disorders is also a difficult problem for many patients.
t talk about it.
" in fact, at first they also do not have confidence and motivation, is the relatives continue to encourage themselves, with exercise together, from the beginning of the slow walk, to the back can run five thousand meters, slowly the whole person's mental outlook will improve.
My love and family have been accompanied and supported by their own courage to go on the motivation", at the same time, he encouraged patients, "we are all the same people, after the illness are from scratch, from scratch, and strive to live a good life!" "Dr. Mo Wenjian of guangzhou First People's Hospital said that although heavy-duty regenerative anemia is a very serious hematological disease, but after standardized and active treatment, the therapeutic effect has been greatly improved in recent years.
more than 90% of the patients were cured after the transplant, and most of the patients were able to recover, return to society and contribute to the motherland.
only before starting treatment, patients often face financial difficulties, and it would be very meaningful to be able to help at this time, which would save a lot of lives.
life kisses me with pain, but I sing.
mr. Hu passed on this great love to help and encourage patients with similar experiences.
we also hope that more loved ones and caring businesses will pay attention to this group of people suffering from severe regenerative anemia and help people with re-disabled people with financial difficulties to tide over the difficulties.
we look forward to seeing a better society where everyone is paid.
Shunqing, director of hematology at the First People's Hospital in Guangzhou, called for a new report.
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