Flower season girls swallow 30 pills a day, more than ten years dare not go out, just because... In the end, a few small electrodes saved her

There are all kinds of pain in this world is painful, compassionate but some of the pain has been "stigmatized" patients unfair treatment, and even discrimination against epilepsy is one of them in the 2020 hit drama "Thirty Only" on the topic of "epilepsy discrimination" also once hot search female owner's children in a very expensive bilingual kindergarten school suddenly a classmate fainted, convulsions originally this child with epilepsy parents asked to return the child to school In the parent group "" went back and got the support of most parents in reality such discrimination is not uncommon today we want to tell the story of a beautiful girl to tell everyone epilepsy is just a common disease they have suffered very great pain should no longer be discriminated against, excluded and, with medical progress most epilepsy can be cured or very good control he (she) also yearning for a better life flower season girls love "go" is suffering from epilepsy " which color look better? The 27-year-old, who ersen by his first name, sent the message in a weChat circle of friends, complete with six different hair color hairstyles and a naughty smiley face.
20 minutes ago, she had just received permission to "dye her hair" from her attending physician, Dr. Wu Dengsing, deputy director of the Epilepsy Center of Zhejiang University Hospital, so she couldn't wait to plan to dye her hair and plant false eyelashes.
"I've always wanted to dye my hair and get my eyelashes, but I'm afraid I'll get sick in the store."
"Little rain is a little sad, but immediately happy again, " but I now finally dream! "She ran to the barber's and dyed a very bright maroon, and the whole person was radiant.
, the drizzle was almost enough to stay at home, even if you went out, but also wearing a hat.
do not want to look at others, are bowed their heads, and then the number of cases more, basically do not go out.
"recalled all the past, a little tears came out of the eyes of the rain.
childhood, Xiaoyu is a beautiful little girl, born in Jiaxing, Jiangnan Water Township, she, big eyes, white skin, very likeable.
at that time, the character is lively, love to sing and dance, often make the neighborhood laugh.
However, from the 6th grade of primary school, Xiaoyu's mother found that her daughter often "go out of her way", is doing homework, suddenly stopped writing, eyes staring at the topic, at first the mother thought her daughter was thinking about difficult problems, but found that she did not respond for several minutes, called her also did not respond.
wait until "back to God", xiaoyu like nothing happened, was asked by her mother anxiously, said: "May be tired."
" into junior high school, Xiaoyu mother found that her daughter "walking" more and more frequent, the duration is getting longer and longer, there are several times, the daughter stayed and looked at a place, but the mouth is not constantly open, like chewing things, but after recovery, the daughter and ordinary people, there is no headache dizziness and other symptoms.
"Is it too much pressure to learn?" "Little rain mother although feel strange, but the daughter from a young sensible, learning has not let oneself worry, the results are not too big fluctuations, so she changed the trick to xiaoyu to do a good job of eating, but also often "urged" her holiday and friends to go out more.
, in the first year of Xiaoyu's reading, the mystery of her "love to go to God" was solved.
weekend in June of that year, xiaoyu, who was reviewing the final exam at home, had his first convulsion and was taken to a local hospital, where he was diagnosed with epilepsy.
A day swallow 30 pills or frequent seizures from now on, xiaoyu every day to take medicine, although the family as far as possible to protect her, but she has epilepsy news or by the students know, although we did not directly say anything about Xiaoyu, but no one came to her after class to play, do experiments, do duty group time, no one is willing to and her group.
, lively and cheerful drizzle, became silent.
pictures in order to cure her daughter's illness, Xiaoyu mother took her to run a lot of hospitals, eat a lot of hardships.
In order to record the seizures of light rain, every time to go to the hospital, small rain needs to be "wrapped in the line" on the head to be monitored, often a record is several days, wash your face and brush your teeth to go to the toilet to be done in bed.
long-range video electroencephalogram examination, time after time CT and magnetic resonance, and even once almost fooled to Shandong to receive so-called "electromagnetic interference" treatment ... Toss for many years, but more and more attacks, intermittently after reading high school, Xiaoyu did not continue to study.
To 2015, the onset of light rain more and more frequent, she also went to the emergency department many times, painful drizzle in order to reduce the attack, every hospital recommended her to take more than 30 different drugs, almost every day to pour herself more than 30 different drugs, these drugs have had huge side effects: on the one hand, she had serious kidney stones and other complications, several hospitalizations;
, I don't want to live.
" physical and mental double blow, the drizzle is no longer burdened.
she doesn't get sick, she sits on the balcony for a long time and looks outside quietly.
xiaoyu mother was very afraid, almost 24 hours to watch her daughter, for fear of her accident.
the day she was discharged from the hospital, she changed into a new dress in early 2018, Xiaoyu because of a seizure occurred a number of falls, was sent to Zhejiang University Hospital emergency department.
Zhejiang University College Epilepsy Center Deputy Director Dr. Wang Kang rushed to the urgent consultation, carefully looked at Xiaoyu's past inspection data, Wang Kang Deputy Director believes that Xiaoyu has belonged to the drug resoicable epilepsy, soothing Xiaoyu mother, decided to xiaoyu epilepsy surgery evaluation.
Xiaoyu entered the epilepsy center of Zhejiang University Hospital and underwent a head magnetic resonance, PET-CT, and neuropsytherapy assessment.
in order to capture xiaoyu's seizures and electroencephalograms, Deputy Director Wang Kang arranged a long-range video electroencephalogram monitoring for her.
this time the video E-map makes Xiaoyu feel a little "different", it is "wireless", they can move freely, no longer need to be a bunch of "wires" trapped in bed.
, Xiaoyu had a seizure, and the wireless video electroencephalogram clearly recorded the symptoms of her seizure and the change in the electroencephalogram.
as usual, a small rain after a seizure shortly after the interval, and then again, one day and again and again more than ten times.
In order to relieve the pain of light rain as soon as possible, Zhejiang University College Epilepsy Center for xiaoyu carried out a number of imaging examination, and her condition was comprehensively studied and discussed, and soon worked out a suitable treatment plan.
" colloquially speaking, epilepsy is an abnormal discharge of neurons in the brain, leading to a short-term dysfunction of the brain a chronic disease, so the first step is to find the abnormal discharge of the brain in this area, that is, lesions.
" Deputy Director Wang Kang said, "comprehensive medical history, check the situation, Xiaoyu epilepsy should be caused by lack of oxygen at birth, we diagnosed and treated a lot of such patients, their incubation period is different, some children seven or eight years old on the disease, and some like Xiaoyu so to more than ten years old to become ill."
" after the initial locking of the lesions, in order to accurately locate the spatial range of the lesions as far as possible, to avoid or reduce the damage to the patient's brain by surgical treatment, the team of experts from the Epilepsy Center of Zhejiang University Decided to perform a "stereotactic electroencephalogram" of Xiaoyu, that is, to implant multiple electrodes in Xiaoyu's brain, to monitor her brain in real time, and every time the disease occurs, abnormal signals released by neurons will be transmitted to the monitoring screen through electrodes, showing abnormal spatial distribution, so that it can be very accurate to know where the problem is.
designed the electrode three-dimensional implant scheme, Dr. Wu Dengsing, deputy director of the computer to rebuild Xiaoyu's brain, and designed the electrode three-dimensional implantation program.
" electrode implanted in the brain, will it cause harm? "Mother Xiaoyu, who has been on the run for years, is scared.
" please rest assured that this electrode is very thin, even will not leave scars, will not affect the normal physiological function of light rain.
," explained Dr. Wu Deng, deputy director.
Yuehui, Deputy Director of the Center for Epilepsy in the Relationship between
Implanted Electrodes and Skull Vasculars, with the assistance of ROSA ONE, the world's most advanced neurosurgery robot, precisely implanted electrodes into the design site for Xiaoyu.
" postoperative CT and preoperative planning fusion images show that there is almost no error in the position of the electrode.
" drizzle was monitored in the general ward.
electrode recorded the abnormal electroencephalogram of the light rain at each time the disease, Wu Deng sings deputy director physician according to the intracranial discharge of the drizzle attack, accurately described the abnormal discharge of the three-dimensional space part of the drizzle brain.
"the location of her illness does not belong to the brain function area, treatment will not affect language, behavior and other functions."
" determined the location of the disease, Dr. Ma Yuehui performed a "cropped" operation on Xiaoyu, that is, the removal of epilepsy lesions in Xiaoyu's brain (the brain tissue where abnormal discharge neurons are located).
postoperative examination and monitoring, the lesions in the drizzle brain were completely eradicated and no abnormal discharges were found.
the day she was discharged from the hospital, Xiaoyu specially asked her mother to buy a new dress.
" these two years of frequent illness, I have not worn a skirt, afraid of sudden illness when falling and breaking, from now on, I want to wear the world's most beautiful skirt! "After being discharged from the hospital, Xiaoyu returned to normal life, holding a good impression of Hangzhou, she is now in Hangzhou to find a job as a clerk, but also in the adult self-examination, regained the confidence and love of life, until now, no seizures.
"I hope to return to normal life, also hope that people do not use colored glasses to see me, but I feel that people still have a misunderstanding of the disease, so I still changed the city life, I hope that one day, I can talk about the experience like a common cold.
, " said Xiao Yu.
If we hadn't known her story in advance, we wouldn't have seen her as a person with epilepsy, young, beautiful, smiling, just like any beautiful girl.
" folk custom to use the words 'sheep crazy' or 'sheep horn crazy' to refer to epilepsy, coupled with the onset of the disease, there may be some scary, so social discrimination against people with epilepsy is not uncommon.
Professor Luo Benyan, director of neurology at Zhejiang University Hospital, director of the Epilepsy Center and a special physician at Zhejiang University, said, "Many of the patients we received were suspended from school, did not work, and even some parents thought their children were so disgraceful that their lives were greatly affected and the whole family could be affected."
in fact, the treatment of epilepsy has been very standardized and advanced, most epilepsy can be treated through drugs, surgical treatment, or get good control.
" We hope that more people with epilepsy can like Xiaoyu, and finally have a better life, but also hope that each of us, can scientifically understand the disease, do not discriminate, harm people with epilepsy, so that they actively face the disease, as soon as possible to accept scientific and standardized treatment, as soon as possible to return to normal life.
Refusal of Discrimination Source: Zhejiang University Copyright Notice: All text, images and audio and video materials on this website that indicate "Source: Mets Medicine" or "Source: MedSci Original" are owned by Mets Medical, and are not authorized, and may not be reproduced by any media, website or individual, and shall be reproduced with the words "Source: Mets Medicine".
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